How can neurotypicals help?

AASCEND’s sixth annual potluck brunch went off swimmingly. Amid the feasting and the uproar we watched the elegant promotional video for Paul Nussbaum’s proposed autism-awareness trek across Greenland and we had a blast singing karaoke to captioned Youtube videos under the skilled direction of Stacey Kennedy.

At the upcoming May 18 AASCEND meeting come join a discussion of How can neurotypicals help? What has been your experience and what do you suggest? People on the autism spectrum and their neurotypical friends are invited to weigh in on and from all sides of the question. It promises to be an interesting and provocative discussion. All are welcome and as always it’s free!

When: Sat May 18, 10am – Noon  
Where: The Arc of SF 1500 Howard St.   11th St.    SF, CA 94103  map

Annual Potluck Brunch celebrating Autism Awareness Month

AASCEND’s outreach month went great! We had good response and a good time at both the Dominican University and John O’Connell resource fairs.

Up next is AASCEND’s sixth annual potluck brunch! Come bid a joking farewell to the Asperger’s diagnosis (in the Diagnostic and Statistical Manual – the “DSM5″) at AASCEND’s annual celebration of Autism Awareness – and Advancement! – Month.

There will be food, music and community. Bring food to share if you can. All are welcome!

When: Sat Apr 13, 11am – 1:30pm    (10am set-up)
Where: The Arc of SF 1500 Howard St.   11th St.    SF, CA 94103  map

Outreach Month at AASCEND

March will be a month of AASCEND outreach activities and there will be no regularly scheduled general meeting. Instead, join the fellowship and fun at two autism resource fairs on Saturday, March 23! Come join us at our table and help get AASCEND’s important message out. Just show up at the door and mention you are volunteering at the AASCEND table. Admission  is free. Volunteers are particularly welcome for the afternoon. These are the two choices:

1) The Autism Resource Fair at Dominican College, 50 Acacia Avenue in San Rafael, 9:00 AM – 2:00 PM. Admission is free and workshops are free to AASCEND table staffers. map

2) The Support for Families Information & Resource Conference at John O’Connell High School, 2355 Folsom St, San Francisco, 8:30 AM – 3:30 PM. Admission is free as are workshops. map

Typical resource fair scene image

See you there!

Citizen Autistic: A powerful new film starring friends of AASCEND

At our February 23 meeting view and discuss William Davenport’s bold new film, Citizen Autistic, featuring AASCEND participants Landon Bryce, Robyn Steward, Ari Ne’eman, Zoe Gross, Rudy Simone and others – with cameos by many AASCEND members. William Davenport directed the earlier AASCEND-related film, Too Sane for This World.  (If you like the new film you can support it here.)

Citizen Autistic is not bland. It spotlights the divide between autistic self-advocates and organizations seeking a cure for severe forms of autism. This advance screening can serve like a focus group:  Come air your opinion and we’ll pass useful feedback on to the filmmaker. Is the film’s message needlessly divisive or is its message needed to guarantee the acceptance, representation and support for autistic people? Does the film reflect our views and approach as an organization? These are not easy questions, but together we’ll bravely tackle them and related questions about coping with being different in a neurotypical world:

* How do you experience neurotypical reactions to your autism?
* How have you dealt with it personally and has it worked?
* Do any forms of autism merit a search for cures?
* As a neurotypical parent do you feel heard by autism self-advocates?
* Do disabilities like cerebral palsy give appropriate models for how to both accept and in some cases seek to cure a condition?
* Have you ever felt discriminated against because of your autism?
* Have autistic rights become a full-fledged civil rights issue like those faced by minorities, gays, and the disabled?

There won’t be time for all these questions, of course, but the discussion should be lively. Come and join the fun!

When: Sat Feb 23, 10am – Noon
Where: The Arc of SF 1500 Howard St.   11th St.    SF, CA 94103  map

 

AASCEND Protests Discriminatory Statement

Responding to comments in a recent San Francisco Magazine article AASCEND’s Board of Directors sent the following letter to the magazine, followed here by an accompanying press release.

UPDATE: Read San Francisco Chronicle writer Laura Shumaker’s blog about the AASCEND protest here.

                                www.aascend.org

February 11, 2013

Mr. Steven Dinkelspiel

San Francisco Magazine
243 Vallejo Street
San Francisco, CA 94111

Re: Comments re: “Asperger’s behavior” in SF Magazine article by Mr. David Talbot on Tech Community

Dear Mr. Dinkelspiel,

We are members of the board of directors of the Autism Asperger Syndrome Coalition for Education, Networking  and Development (AASCEND)—an organization of adults on the autism spectrum, friends and family, and professionals who work with them.  We write now regarding statements about people with autism made in an article that appeared in San Francisco Magazine by Mr. David Talbot on “How Much Tech Can One City Take?”

Normally, we would not respond to statements made by individuals without expertise in the field. However, this article has achieved considerable attention, given the role of the tech community in San Francisco. Further, we note since the article’s publication you have made other corrections to it on your website.

In the article, Ms. Susan MacTavish Best is introduced as a prominent public relations executive, who is critical of the self-centeredness of San Francisco’s tech community. She denounces tech entrepreneurs as caring only about themselves. She is quoted as follows: “I will not tolerate people who think they can behave rudely just because they’ve been told their whole lives that they’re special. I think that sort of Asperger’s behavior, that super self-absorption, should be discouraged. I don’t care if you’re a Rhodes scholar and you just got VC funding for your new app, you still need to wash the dishes.”

Ms. MacTavish Best is entitled to her opinion. However, readers should be told that her opinion has no medical or psychological foundation. People on the autism spectrum are not defined by a selfishness or self-absorption. People on the spectrum differ widely in skills and characteristics—as widely as the general population. Some people on the spectrum do have difficulties in communication that may lead others to think them remote. But such difficulties are usually neurologically-based, and do not deserve the criticism of Ms. Best or others.

AASCEND was formed in part to combat misconceptions about people with autism and other neuro-diverse conditions.  We would request you make note on the Magazine website carrying the article that Ms. Best’s claims are challenged by members of the autism community.

You can best reach us through our co-chairs … or through our website, info@aascend.org.

Yours,
[The AASCEND Board of Directors]

Press Release:

Adult Autism Group in San Francisco Responds to San Francisco Magazine article calling persons with autism “self absorbed” and “selfish”

The board members of the Bay Area’s Autism Asperger Syndrome Coalition for Education, Networking and Development (AASCEND), today issued a letter to San Francisco Magazine, challenging comments made in the Magazine describing persons with autism as “self-absorbed” and “selfish”.

The comments were made in an article by journalist and Salon founder, David Talbot, “How Much Tech Can One City Take”. In this article, Mr. Talbot introduces Ms. Susan MacTavish Best, a prominent public relations executive, who denounces tech entrepreneurs as caring only about themselves. She is quoted as follows: “ I will not tolerate people who think they can behave rudely just because they’ve been told their whole lives that they’re special. I think that sort of Asperger’s behavior, that super self-absorption, should be discouraged. I don’t care if you’re a Rhodes scholar and you just got VC funding for your new app, you still need to wash the dishes.”

AASCEND board members called on the Magazine not to allow this comment to go unchallenged. The board requested the Magazine to indicate on its website and further dissemination of the article that members of the autism community challenge this linking of self-absorption and self-centeredness with autism.

Mr. Gregory Yates, AASCEND Co-Chair explains, “It is unfortunately easy to confuse autistic social disability with self-absorption. Sadly, this common confusion does great harm to the many autistic people who, despite remarkable and relevant abilities, are much more likely to be washing dishes than being accepted in a high-tech workplace.”

Ms. Camilla Bixler, who serves as AASCEND Co-Chair along with Mr. Yates, states, “Autistic people have difficulties with social interaction and often with communication, not with being ‘self-centered’ or ‘selfish’. Autistics make heroic efforts to be included as respected and contributing members of our society, in spite of their neurologically-based challenges. As the mother of an adult autistic son, I urge people to learn the facts about autism.”

AASCEND was formed in part to combat misconceptions about people with autism and other neuro-diverse conditions.

Diagnosing Diagnosed

We had a good turnout for the Diagnosing Diagnosis discussion, with lively participation from all present. There were also reports on AASCEND’s recent presentation at the Huckleberry Wellness Academy and on various research projects involving AASCEND. Stay tuned for upcoming AASCEND meetings and events to be announced here shortly.

Diagnosing Diagnosis: What good is an autism diagnosis?

Join AASCEND for a moderated discussion on the meaning of diagnosis. Share your experiences and opinions or just listen as we consider the significance of seeking (or not) and getting (or not) a diagnosis of autism or Asperger’s. What does it involve? What if you’re denied? What services does a diagnosis get you anyway? What does diagnosis mean to your identity? What about people who are self-diagnosed? And, of course, how do you feel about the upcoming changes in the DSM-V?

AASCEND past president Jack Fagan will lead the discussion of this sensitive and important topic. All are welcome and as always it’s free!

When: Sat Jan 26, 10am – Noon
Where: The Arc of SF 1500 Howard St.   11th St.    SF, CA 94103  map

AASCEND Holiday Party!

Come celebrate the season at AASCEND’s Annual Holiday Potluck Party.
Join our community for food, conversation and good cheer. There will be musical entertainment by vocalist and AASCEND member Stacey Kennedy. Bring food to share if you can. If you can’t, show up anyway!

When:  Sat Dec 8,   2 – 5 pm
Where: The Arc of SF   1500 Howard St. @ 11th St.    SF, CA 94103   map

Set up:    1:00 – 2:00
Party:        2:00 – 5:00
Food:        2:30 on
Cleanup:  5:00 – 5:30

Parking Garage – $5.00 all day on 12th St. between Howard and Folsom

Frontiers in Autism Employment

All are welcome at this presentation and discussion of new employment possibilities for people on the autism spectrum. Join us with your experience, thoughts and feedback!

Innovative entrepreneurs Rick Reddy of Semperical and Andy Aczel of The Specialist’s Guild will discuss their new business models specifically designed to use the abilities of adults on the autism spectrum.

 Rick Reddy – Vice President, Marketing and Business Development

Semperical is a high-performance software testing and Quality Assurance enterprise with a powerful technical “engine” fueled by the exceptional qualities inherent in our engineers on the autism spectrum. We’re a social enterprise whose unique engineering talent sets us apart from the competition. Our specialized program unleashes the incredible natural talents of people on the autism spectrum.

The Specialist’s Guild  

 Andy Aczel-Founder, Board Member and CTO

The Specialist Guild is a nonprofit social enterprise focused on providing training, employment opportunities and support for people on the Autism Spectrum so they are able to contribute to society in line with their intelligence and abilities.  The Specialists Guild provides software and product testing, graphic design and data entry services.

When:   Sat Nov 17, 10am – Noon
Where:  The Arc of SF   1500 Howard St. @ 11th St.     SF, CA 94103     map

Renaissance in Autistic Art

At AASCEND’s October 20 meeting Phil Shemanski will discuss the launch of a new online art gallery Renewing the Renaissance featuring the work of artists with challenges including autism. Phil will talk about this for-profit business, the art it represents and the artists it employs.

PLUS:
AASCEND members will report on their recent meeting with the trailblazing Autistic Global Initiative in Boulder, Colorado. Here we are with Temple Grandin:

When:   Oct 20, 10am – Noon
Where:  The Arc of SF   1500 Howard St. @ 11th St.     SF, CA 94103     map